Agenda Item 2AAGENDA ITEM # 2A
MAY 23, 20I1
Prodamation
Declaring May 2011
Neurofibromatosis (NF) Awareness Month Across America
WHEREAS, NF causes tumors to grow on nerves anywhere in the body, bone and skin
tumors, bone deformities such as spinal scoliosis; leg bowing or twisting, cafe au lait spots on the
skin, deafness, blindness; learning disabilities; debilitating pain, heart defects and even death; and
WHEREAS, NF is more prevalent than Cystic Fibrosis, Duchenne Muscular Dystrophy,
Tay Sachs and Huntington's Disease combined; and
WHEREAS, NF can appear in any family and is worldwide in distribution, affects both
sexes equally and has no particular racial or ethnic distribution; and 85% of cases are sporadic (no
previous family history) and 15% are inherited; and
WHEREAS, While over 120, 000 Americans have NF and one of every 3, 000 newborns will
develop the disorder, it still is relatively unknown to the public and much remains to be done to
raise awareness of NF's devastating effects and the need for funding for research to prevent, treat
and cure NF; and
WHEREAS, The Children's Tumor Foundation leads the efforts to fund critical research
aimed at finding the causes of the disorder and developing treatments and a cure, and to provide
support to people and families affected by NF; and
WHEREAS, NF research benefits an additional 100 million Americans (i.e. 65 million with
cancer and 35 million with learning disabilities); and
WHEREAS, The Children's Tumor Foundation is observing May as National
Neurofibromatosis (NF) Awareness Month nationally to inform the public about this common
genetic disorder.
NOW, THEREFORE, I, Mike Borno, Mayor of the City of Atlantic Beach, in recognition of
this important initiative, do hereby proclaim the month of May, 2011 as
Neurofibromatosis Awareness Month
In the City of Atlantic Beach, and urge our citizens to join the Children's Tumor
Foundation's efforts to increase awareness of the importance of finding a treatment and a cure to
NF.
17V WITNESS WHEREOF, I have
hereunto set my hand and caused the
Official Seal of the City of Atlantic Beach
to be affixed this 23 " day of May, 2011.
Mike Borno, MAYOR